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Motor Neurone trial

Discussion in 'off topic' started by hifinutt, Jan 15, 2020.

  1. hifinutt

    hifinutt hifinutt

    Mnd as I am sure you know is the most horrific disease.good to see on the BBC news tonight that there will be some clinical trials to help folks perhaps in the future.
     
  2. stevec67

    stevec67 pfm Member

    You've just prompted me to make a charity donation. I was working out which medical charity I fancied.
     
    hifinutt likes this.
  3. TheDecameron

    TheDecameron Unicorns fart glitter.

    Let’s hope. There will be huge amounts of investment in the States into finding a treatment for this, unlike MS there’s really nothing. I used to know people at MND Scotland , the charity that funded this work. I had a friend who died of it recently and though it’s a rare condition, I know of two others through friends who’ve died from it.
     
    hifinutt likes this.
  4. Derek Wright

    Derek Wright pfm Member

    Interestingly MND was talked about in the
    https://www.pinkfishmedia.net/forum/threads/rob-burrows.235907/
    Rob Burrows thread a few days ago,

    What confuses the issue is that there are at least 3 names used by the public according to the country it is being discussed in eg Amyotrophic lateral sclerosis (ALS), also known as motor neurone disease (MND) or Lou Gehrig's disease.

    Under the Lou Gehrig name a lot of charity events are held in the US, perhaps we need to call the condition Stephen Hawking disease in the UK to increase awareness of the condition and help raise funds to help with funding research activity
     
  5. Pete MB&D

    Pete MB&D Pete Maddex, the one and only!

    My farther in law died from it, the interviews with people suffering are difficult to watch, as they talk just like he did.

    Pete
     
    hifinutt likes this.
  6. doctorf

    doctorf left footed right winger

    I went to visit a pal of mine in a local hospice this afternoon. He’s gone from a water sports instructor to near death in about 4 years.
    A very nasty disease.
     
  7. hifinutt

    hifinutt hifinutt

    Indeed , seen it first hand a few times now and it is horrendous. Needs the support from physios, hospice , dietician etc
     

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